23.10-29.10.2017 Another quiet week. On Monday night, Kostya practically did not sleep. So he had to catch up and slept all day long. On Tuesday KOstya played well with the ball. Every day we exercised on a treadmill and did some physiotherapy. When we had a chance we went outside for a walk.
16.10-22.10.2017 Nothing significant has happened this week. The weather was bad, so it matched Kostya’s mood. Except on Thursday with a smile on his face Kostya was watching his niece playing, but after this he then wept bitterly.
09.10-15.10.2017 On Monday Kostya’s mood was good, with noticeable pleasure he played a ball. On Tuesday night he wept bitterly. On Wednesday night Kostya saw something in a dream, and it almost made him to jump on the bed, it's very good that Dad managed to catch him. On Saturday Kostya muttered something back, when mum asked him: "Is your name is Fedya?".
25.09-01.10.2017 The week was calm. Kostya’s mood changed often: one moment Kostya was what was going on around him with a smile on his face, then the next moment he wept bitterly. On Thursday, when mom asked Kostya: "Are we friends?", Kostya nodded his head. It was difficult to determine for sure, whether this was done intentionally or simply was a coincidence. After this Kostya tried to repeat the nursery rhyme inner voice.
25.09-01.10.2017 The week was calm. Kostya's mood changed often:one moment Kostya was what was going on around him with a smile onhis face, then the next moment he wept bitterly. On Thursday, when momasked Kostya: "Are we friends?", Kostya nodded his head. It was difficultto determine for sure, whether this was done intentionally or simply was acoincidence. After this Kostya tried to repeat the nursery rhyme innervoice.
18.09-24.09.2017 At the beginning of the week the weather wasnot very good, so most of the time we spent at home. But on Saturday and Sundaythe weather turned sunny. During the weekend we took some long walks on thestreet. Kostya spent plenty of time walking on his feet, was smiling a lot.While we were walking on the river bank he watched the boats on the river, wasobserving children riding a train along the promenade, laughed as he waswatching his little niece playing.
11.09-17.09.2017 This week Kostya got a little cold, but he hadno temperature. On Thursday, it seemed to my mum, that Kostya moved his lips onher request. The weather on Sunday was warm and sunny and we spent a lot oftime walking outsideon the street: https://drive.google.com/file/d/0B2_SbPCpvO2kY2lhMkFHSERHOGc/view
04.09-10.09.2017 The week haspassed more or less calmly with the exception of a small epileptic seizure thathappened on Thursday. During the remaining days everything was as usual: we didsome physical exercises at home, worked on exercising machines and thetreadmill at home. When we had some free time we took some walks outside.
28.08-03.09.2017 On Monday Kostya was responding to the contactreally well, reacted to humour. After the walking outside his mood has goneslightly down the hill. On Tuesday there was a good and sunny weather. Kostyawalked well along the street, played with the ball on the stadium. As itappeared to Mum, he raised her eyebrows at her request. On Wednesday we visitedfriends. When Kostya sat behind the table he quickly adapted and began to takethe grapes and apples from the table by himself, he also listened to theconversation and smiled. The next day, when mum said: "Get up, let's gofor a walk," Kostya made an attempt to get up from the sofa. On Saturday,it was seen very well how Kostya was delighted that his niece has returned: hewas watching how she was playing, smiled, listened to what she was saying.
21.08-27.08.2017 On Wednesday evening, Kostya was looking at Mumfor a long time, and then he wept bitterly, it was hard to calm him down. Heseemed like he understands all about his condition . On Saturday we walked fora long time on the promenade, several times Kostya walked independently forabout thirty meters. 14.08-20.08.2017 On Tuesday, Kostya slept well and was wellrested. On the street he was chasing a ball, walked a lot with some support,was smiling. On Wednesday, while Kostya was in the shower, an epileptic seizurehas happened. The last time the seizure occurred more, than two months ago. OnThursday it was funny to watch the situation, when Kostya's niece turnedaway, he took away her banana from her hand. 07.08-13.08.2017 Working week went as usual: before the dinnerwe were doing things with Kostya at home, and after the lunch we went outside.On Wednesday, Kostya took away the phone from the father's hands, which alwayssparks some interest in Kostya and began to examine it it. In the eveningthey tried to play on the metallophone: https://drive.google.com/file/d/0B2_SbPCpvO2kUVhjUmJwelNEdVU/view?usp=sharing . On Saturday we went to the Ust-Narva for thedays of the town. The weather was sunny. There was plenty of interesting thingsgoing on: some playground with obstacles for children, a concert, a big market https://drive.google.com/file/d/0B2_SbPCpvO2kR3c4QXdweHFJNzA/view?usp=sharing . 31.07-06.08.2017 We continued our stay in Haapsalu. Afterintensive training in the pool, on physical therapy, all free time was spent onthe street, good weather was good https://drive.google.com/file/d/0B2_SbPCpvO2kMHBRWHlfTWxndVk/view?usp=sharing . On Tuesday, Kostya beat off the ball well,several times on his own, he kept his balance on walking along the street https://drive.google.com/file/d/0B2_SbPCpvO2kcFNUVUo0R0RqY1E/view?usp=sharing . On Wednesday, Kostya was very adequate: he wassmiling with a smile, listening to what they were saying. On Friday we returned to Narva. 24.07-30.07.2017 On Monday we went to Haapsalu to therehabilitation centre. They got there normally in four and a half hours. OnMonday there were no classes, and starting Tuesday, during the week, I wasengaged with a physical therapist, with a therapist teaching Kostya to dosomething myself, a psychologist, a speech therapist, swimming in the pool.Kostya really enjoyed playing with the ball in the pool https://drive.google.com/file/d/0B2_SbPCpvO2kQ0g4c1RzX2lFbzg/view?usp=sharing . On Saturday they were engaged only with aphysiotherapist, and Sunday was a free day. On this day we met with our goodfriends who came to visit Kostya https://drive.google.com/file/d/0B2_SbPCpvO2kaFpvRU5JNDk1OXc/view?usp=sharing . 17.07-23.07.2017 Physiotherapy sessions at the polyclinichave ended this week. On Monday during the session Kostya was kept his balancereally well while walking, was trying to catch the ball: https://drive.google.com/file/d/0B2_SbPCpvO2kMjNqdURxOGlNcG8/view?usp=sharing . On Tuesday night when Kostya was as;eep hemuttered something. On Sunday, we did plenty of walking. For about fortyminutes, Kostya walked arm in arm along the street. 10.07-16.07.2017 Kostya's physiotherapy sessions at the localpolyclinic have began again. During the classes Kostya actively played with thebakk, did plenty of exercises for stretching. When we were returning home,Kostya by himself took off his cap from his head, which disturbed him. OnTuesday evening while sitting on the couch Kostya with pleasure watched hislittle niece playing on the floor. On Wednesday, he was very tense. At somemoment Kostya got up from the couch and started to walk. It's fortunate thatdad managed to catch him. On Sunday we took a long walk on the street . 03.07-09.07.2017 On Wednesday, Kostya was in a good mood, he wassmiling when we were talking to him. When mum has greeted him in the morning,he tried to answer something back. On Saturdaywe had a long walk outdoors: https://drive.google.com/file/d/0B2_SbPCpvO2kQ2ZDYXM3dWYxWFE/view?usp=sharing . On Sunday it was fisherman's day and we wentto Ust-Narva to a fair. While all the family were at the fair, Kostya and hisfather rested in the parks of the city. 26.06-02.07.2017 The week passed calmly. We finished Kostya'smassage sessions at the local clinic. Soon we will be travelling to Haapsalu,to the rehabilitation centre. On the days when there was no rain, they walkedwith Kostya outside a lot. More and more we take Kostya to walk on his feetoutside. On Tuesday Kostya was smiling a lot and responded well to contact. 19.06-25.06.2015 During some moments, it seems that Kostyaunderstands what he is being told. On Monday, on dads request, he alternatedhis legs while he was going down the stairs. On Friday, during our walk outide,Kostya played well with the ball. As soon as he sees the ball, his moodimmediately rises and he is trying to reach the ball, sometimeseven trying torun towards it. On Sunday, we walked more than a kilometer and then playedfootball: https://drive.google.com/file/d/0B2_SbPCpvO2kQ3lHczdWeWR4VWs/view?usp=sharing . We would like to thank everyone, who senttheir kind greetings and wishes to Kostya and us on his birthday. Thank youvery much! All of your wishes we have read out loud to Kostya. 12.06-18.06.2017 On Tuesday, during the physical therapy Kostyawith noticeable enthusiasm played with the ball, was beating off the ball well using his hands and feet, maintained hisconcentration and stayed focused for more than 15 minutes. On Fridayphysiotherapy sessions have ended, so now we will go for a massage course. Manythanks to the physiotherapist Nina, who energetically and enthusiasticallydealt with Kostya. Next week, on the 24th of June it is Kostya'sbirthday, he turns 34 years old. 05.06-11.06.2017 We continued our physiotherapy lessons. OnWednesday while Kostja was walking he managed to keep his balance very well andon Thursday he actively played with the ball: https://drive.google.com/file/d/0B2_SbPCpvO2kaTRhNXF2bWVyMGc/view?usp=sharing , https://drive.google.com/ File / d / 0B2_SbPCpvO2kbkthTGtqUWZubDA / view?Usp = sharing. During this week we spent plenty of time outside. OnSunday we spent the whole day on the fresh air. 29.05-04.06.2017 During the whole week we actively were engagedin physiotherapy sessions. Kostya really likes these classes and he is so happyto perform the tasks. He beated off the ball well with his feet: https://drive.google.com/file/d/0B2_SbPCpvO2kMjF2NWltdXRUU3M/view?usp=sharing , hands: https://drive.google.com/file/d/0B2_SbPCpvO2kVmVpWDFvZXc3b1E/view?usp=sharing , Https://drive.google.com/file/d/0B2_SbPCpvO2kSmt6NExxdzRsQlE/view?usp=sharing , tried to keep the balance while he waswalking: https://drive.google.com/file/d/0B2_SbPCpvO2keW5yelljWG5jdHc/view?usp=sharing . On On Saturdaywe went to the annual Town Daysto the park near the castle https://drive.google.com/file/d/0B2_SbPCpvO2kVV9ZOTF6eF9CR1k/view?usp=sharing . 22.05-28.05.2017 The weather this week was good, so wetried to spend more time outside. On Tuesday Kostya pushed his wheelchair alongthe promenade: https://drive.google.com/open?id=0B2_SbPCpvO2kWkNmWVZ0LVhGYU0 . On Wednesday Kostya's physiotherapy classes atthe clinic have began. Normally Kostja enjoys these sessions a lot. On Thursday,Kostya was in a good mood: https://drive.google.com/file/d/0B2_SbPCpvO2kdTJNd0dXMXlFY2s/view?usp=sharing . On Friday Kostya sat on a chair behind thetable by himself, with a smile he watching the people around him, and in theevening he bursted into tears. On Saturday, we went for a walk on thepromenade: https://drive.google.com/file/d/0B2_SbPCpvO2kRTNTUVY0QTZrMjA/view?usp=sharing . 15.05-21.05.2017 The week passed by very quickly. On Tuesday, Kostya dranksome tea very well from the mug. Usually we give him his drinks through aplastic syringe. On Wednesday night he almost did not sleep at all, somethingbothered him.Kostya likes to play with a mum's phone and he often stretches outhis hand and takes it. On Saturday was night of museums and in the evening wewent to the castle. Kostya was happy and watched people around: https://drive.google.com/file/d/0B2_SbPCpvO2kWW5RdkVzdE05T2M/view?usp=sharing , https://drive.google.com/file/d/0B2_SbPCpvO2kQzJ5dW15X0g4TlU/view?usp=sharing . 08.05-14.05.2017 On Monday evening Kostya had not very strong epileptic seizure. The nextday Kostya was communicative: he moved his tongue, gave his hand to a father,was smiling as a response to our request. He was just as good on Wednesday. OnFriday afternoon Kostya cried, and in the evening he watched attentively theguests who came to visit us. From a GP Wwe took a referral letter for amassage and from the 25 of May we will go to the local clinic for thephysiotherapy. 01.05-07.05.2017 On the 1st of May during the night time, Kostya did not sleepwell, but during the daytime next day he made up for it: https://drive.google.com/file/d/0B2_SbPCpvO2kTDJPb29SM2p6WUk/view?usp=sharing . On the second ofMay he appeared to feel good and in the evening with some noticeable pleasureplayed with the ball. On some warm days of this week we took a long walksoutside. 24.04-30.04.2017 The week was rainy and cold, so most of the time spent at home. It's veryinteresting to watch Kostya put to sleep. Almost always he smiles, andsometimes he laughs in his voice when the pope sings a lullaby to him. OnTuesday, Kostya played well with a tennis ball. When guests came to see him,Kostya peered closely at their faces and smiled. 17.04-23.04.2017 On Wednesday evening Kostya had a mild epileptic seizure. On the next day,as it often happens after the seizure, Kostya was in a good mood: independentlyhe ate some potatoes with tomatoes, he also took some nuts by himself and atethem. On Sunday, Kostya enjoyed playing with the ball https://drive.google.com/file/d/0B2_SbPCpvO2kbmh2anR5OUpIUG8/view?usp=sharing . 10.04-16.04.2017 Kostya's accident has happened exactly 7 years ago. On the 10thof April 2010 Kostya had an accident on the river. Since then plenty ofthings have changed, but also plenty of things remain the same. In regards tothe physical condition everything has improved significantly, butunfortunately we still do not have a sustainable contact with Kostya (whenwe ask him to do things, and he would perform these action). On Sundaynight this week something has frightened Kostya during the sleeping time, sothat from the position of lying on the bed he sat up and grabbed the pillow. OnThursday Kostya's mood was good and on mum's request he moved the index fingerof his right hand several times. 03.04-09.04.2017 This week was a very positive one: Kostya often was in a good mood, hesmiled at people and was watching what the surrounding people do, played with aball. On Tuesday we spent a long time outside, Kostya walked along the streetfor at least one kilometre. On Sunday we walked on the promenade. 27.03-02.04.2017 The past week had little difference from the previous one. The weather wasdull, and Kostya had exactly the same mood. Although, the positive thing isthat Kostya began to sleep better during the nights. On Monday, duringthe feeding time, Kostya pronounced some word. In the evening he was watchinghis niece playing with a smile on his face. On Tuesday he played well with theball and with my mum's hand. On Wednesday evening Kostya was crying again. 20.03-26.03.2017 The week passed quietly. On Monday and Tuesday evenings Kostya weptbitterly. On Thursday Kostya's mood was good, so he played a ball withnoticeable pleasure. On Friday, during the meal he said some word. Apart fromthat nothing much was happening. 13.03-19.03.2017 On Monday, after dinner, Kostya listened to the songs and at some point hebegan doing something what looked like he was trying to sing along. On Thursdaynight he had not too strong epileptic seizure. The last time it happened wasalmost a month ago. On Sunday evening Kostya played a ball very well with hissister and niece. He was trying to reach for the ball and push it off thecouch. He actively monitored the movements of girls. Then he listenedattentively to some fairy tales. 06.03-12.03.2017 Just seven physiotherapy sessions were scheduled at the local GP and theyended very quickly, so we had to take a new referral letter. The rest of theweek was similar to the previous ones: we played the ball a lot, went for a walk,sometimes Kostya cries in the evenings. On Saturday Kostya laughed, when helistened to the tale what his little niece Polina watched on the TV. On Sundaywe went outside and walked on the promenade. The weather was good and therewereplenty of many people walking on the promenade. Kostya was in a good mood,he was smiling and watching people https://drive.google.com/file/d/0B2_SbPCpvO2kVU1aekRMbGE3Wjg/view?usp=sharing , https://drive.google.com/file/d/0B2_SbPCpvO2kX20yN1luRU41QXc/view ? Usp = sharing. 27.02-05.03.017 During the whole week we went to the physiotherapy sessions at the localGP. Kostya really liked the sessions and was very active. With a visiblepleasure he catched and beated off the ball during the physio: https://drive.google.com/file/d/0B2_SbPCpvO2kNjBOcjFGU1BUSlE/view?usp=sharing . On one of thedays, when Kostya was watching one of his favourite films "Three PlusTwo" - he began to smile, when he saw a funny episode in the film. 20.02-26.02.2017 We try to spend some time outdoors everyday. On Thursday, Kostya waswalking outside on the street, during his walk he was holding his head uphigh. When mum said, that on Sunday we will meet with the tourist group fromthe Baltiets factory - Kostya smiled in response. On the 24th, on an EstoniaIndependence Day celebration, Kostya walked very well up the stairs, played theball nicely. On Sunday we went out on the Orekhovaya hill https://drive.google.com/file/d/0B2_SbPCpvO2kdDhYVGRLMGp0WEU/view?usp=sharing , where wemet with people and ate some pancakes07.12-13.12.2015 week haspassed quietly. On Tuesday Kostya took a cup of tomato juice by himself anddrunk it. He also took some mandarins, cookies, and bananas from the tablesurface and ate them. On Sunday, we had a long walk on the promenade outside.Kostya was walking almost without any support, he held his head high, we wentup the hill to the Swedish lion statue. On Sunday in Tallinn cafe 'Nikolai', acharity concert was held https://www.facebook.com/events/1618998618364361 . 305 euros were raised by volunteers and weretransferred to us for Kostya treatment. We thank Maxim very much for organizingthis concert.
30.11-06.12.2015 On Monday,after the physiotherapy session, we�ve put Kostya to lie down on his stomach.After lying down for a moment he suddenly got up so quickly, that barely hadtime to catch him in order to support him. When mother was saying to Kostyathat she loves him, he raised his eyes, looked at her and smiled. Kostya lovesto watch his little niece. On Thursday, with a laughter, he was watching how"neatly" she ate, and then she was running around the room. OnSunday, while sitting on the couch, mum took Kostya�s hand and began to saysome nursery rhyme. Kostya at first smiled and then laughed.
23.11-29.11.2015 Thephysiotherapy sessions at the local surgery has ended and now we train at home.Week went quietly. Due to the currentweather Kostya was in a sleepy mood. During the week, Kostya has done plenty ofwalking on the street. On Wednesday Kostya sat with his head bowed. Mum said:"Kostya, look how your little niece walks on your (rubber ) mat."Kostya looked up and smiled. Usually Kostya clenches his fingers into fists.When mum asked Kostya to show her histhumb, he relaxed his hand and raised his thumb.
16.11-22.11.2015 On Friday wehad a penultimate session of physical therapy in the local surgery. Both theparents and Kostya liked the classes: https://drive.google.com/file/d/0B2_SbPCpvO2kaklZVDRrX05rVWM/view?usp=sharing . During the sessions Kostya did plenty balancing and stretching exercises : https://drive.google.com/file/d/0B2_SbPCpvO2kQ0xlN1lZOW9rZ3c/view?usp=sharing .This week, on Tuesday, at five o'clock in the morning, Kostya had some not sostrong epileptic seizure. On Wednesday Kostya was a smiley and played well witha ball. On Thursday Kostya was again in a good mood: was having some fun, whiledoing the physio therapy, walked very well outside on the street; was smilingat his niece, who turned one year old this Sunday. When we asked Kostya to saysomething, he made an attempt, moved his lips, but did not manage to do it wellenough yet.
09.11-15.11.2015 Starting thisweek we will attend 10 physiotherapy sessions ( hour each ) in the localsurgery. On Monday Kostya was in a good mood and he enjoyed the session a lot.He especially enjoyed the exercises with a ball: https://drive.google.com/
02.11-08.11.2015 On Mondaymorning, Kostya was crying. When mum made a joke and said, that will gather your tears, dry them andmake the salt, he laughed in response. On Thursday Kostya woke up with a smileon his face, listening to the pioneer�s songs. During the day he playedglockenspiel, and on the street he made 20 steps without any support onhis own.On Sunday he began to cry, when his sister was feeding him. We took a referralletter from our GP and from the nextweek we will attend some physiotherapy classes in the local surgery.
26.10-01.11.2015 Except for thecase of article in the newspaper, in general, this week passed quetly. OnTuesday Kostya played well with the ball; with a smile, on his face he watchedhis niece (who soon will turn 1 year old) playing. On Wednesday, Kostya laughedwhen his sister Tanya read him some funny stories. On Friday we went outside,.Where Kostya was walking very well byhimself, he also was holding his head well. In the evening for some reasonKostya was crying bitterly. On Saturday, he was trying to play theglockenspiel.
29/10/2015 Accidentally we got to knowthat the local newspaper "Viru Prospekt" (quoting the article in the http://tema.ee/ published an article about Kostya on the 10/28/2015 "Helpis needed for a person who saved a friend�s life". We hurry to inform youthat this article was published in the Postimees newspaper in October 2013 andat present moment the facts contained in it are obsolete. Now we're notcampaigning and deliberately not fundraising for the the purchase of the cyclingmachine and treatment with stem cells. Thanks to the donations Kostya hasundergone the treatment in St. Petersburg where 4series of injections of stemcells were made (the last time in April this year -2015). The treatment withthe stem cells is experimental and no one can guarantee a successful result. Atthe moment we did not notice any significant improvement after the injections,so currently we consider whether to continue with the introduction of stemcells. The possibility of the treatment at the Ivo Kolts Clinic, that also includes some unconventionaltreatment ways, currently also remains open. The spinning simulator (cyclingmachine for the legs and hands), which was discussed in the article we boughtfor 2000 euros long time ago from the money raised by kind people, willing tohelp Kostya. Our appeal to the county governor, for the partial compensation (partial rebay) of this machine has not found support from his side. We wouldlike to thank the newspaper "Viru prospect" of a desire to help, butwe will make sure, that we will inform the editors of about their error. Westill get help from some kind people and do not know how to thank them enoughand how to express our gratitude and recognition. In December, Dad as a formalKostya carer will send a report to the Social Department and the sum we spenton Kostya's medications, treatment in St. Petersburg, the purchase ofurine-collection bags from Germany willpublished and publically available )we will inform you), all the figures willbe evidenced by the receipts. Once againmany thanks to all the people with big hearts, who have helped and remembersus. THANK YOU SO MUCH! The updates regarding Kostya�s condition and all thechanges can be found on our website ( https://webzone.ee/konsta
>Sincerely yours, Kostya�s parents.
19.10-25.10.2015 The week wentquite ordinarily. On two occasions Kostya was trying to get out of the chair byhimself. At mum�s request Kostya gave her a hand. Mom told Kostya � Enough ofsitting down, lets go dancing. At the very least, but Kostya tried to move hislegs in a dance.Mum managed to dance a bit better. On Saturday, Kostyawaswalking on the street for more than half an hour, and in the afternoon he was "fighting" with the ball: https://drive.google.com/
12.10-18.10.2015 Another week flew by.Kpostya still has bad night sleep.During the day time Kostya�s mood isconstantly changing. If Kostya wants toeat something tasty, he often helpshimself and takes sweets or fruits by himself. For ecample on he took a bananafrom mum�s hands and ate it. During the day time Kostya bounced back suspendedtennis ball very well: https: // drive.google.com/file/d/0
05.10-11.10.2015 This week has passed quietly. No significantchanges has occured. On Thursday Kostya played a ball game with mom very well.On her request watched her straight in the eye, whereas normally he is tryingto turn away and hide the eyes. He laughed when mom made a joke and stuck hertong out at him. On Saturday and Sunday we walked a lot outside on the streets.We visited GP and were referred to some physiotherapy sessions at the localclinic. In all other respects, everything went as usual, we do plenty ofphysiotherapy at home as well as do training on the machines.
28.09-04.10.2015 On Monday wewent with Kostya to the Epileptology Clinic of Tartu University. On our way tothe clinic Kostya watched around with interest. However in the clinic, his moodhas changed: he became anxious and looked somewhat frightened. When we wenthome, it was very noticeable, that Kostya�s mood has changed and he cheered.The visit to the doctor itself left somewhat painful impression. When thedoctor has asked us about the purpose of our visit, we answered, that we wouldlike to register in order for us to be able to undergo studies every six monthsand to come to the examinations, as well as to correct medication list forepilepsy treatment. Feedback from the doctor was not original: he said, that itis unknown how to treat hypoxia, researches and studies in this area are notcarried out (including stem cells), if there will be problems in the form ofchanges in the frequency of epileptic seizures we ought to contact the doctorand to make an appointment, but better to make an appointment in Kohtla-JarveHospital. With prescribtions from the St. Petersbur doctor fully agreed. Hisonly additional recommendation was to do more physiotherapy. Nearly four monthsof waiting to see the doctor turned into a complete disappointment. >An interesting point was made by mom. OnWednesday, when it was pretty chilly in the house, mum said to Kostya:"Shal we buy you some felt boots and so you can stomp across theapartment." Kostya looked at the mum and laughed. On Friday, the weatherwas sunny and Kostya walked 1.5 km without any rest or stop.
21.09-27.09.2015 On Tuesday,during the dinner, while my mom looked away, Kostya suddenly all by himselftook some marmalade from her hand. It looked very funny. In the evening, Kostyaenjoyed playing with the ball: https://drive.google.com/file/d/0B2_SbPCpvO2kdTN2OEZiVlA5V2c/view?usp=sharing .On Wednesday, he gave his hand for the greeting, and in the evening Kostya weptbitterly. On Thursday, Kostya watched with a great deal of interest a TVprogramme about the oceans and the ships, after it he cried again. On Friday,Kostya was in a good mood, alert, adequate, responsive. When mum has asked him,"Do you hear me?", it seemed to mother, that Kostya nodded his headslightly. And to the question, �can you move your ears�, Kostya laughed inreply. After taking the pills at 18.00- he wilted. On Sunday night Kostya sleptwell, which happens very rarily. During the day, Kostya was walking outsidevery well, in the evening Kostya smileda lot, while he was sitting on the couch https://drive.google.com/file/d/0B2_SbPCpvO2kaDJIdVdCekJncVk/view?usp=sharing .
14.09-20.09.2015 This weekpassed quietly, except the fact that Kostya did not sleep well during thenights. On Tuesday, mom gave Kostya to drink milk from a mug , and Kostyamanaged to get on with this very well. On Thursday Kostya woke up during a walkand became anxious, he has started to look about, and when he saw his mother hecalmed down and smiled. We do not know what caused this, but on Friday morning,Kostya wept bitterly. Kostya�s moodalways cheers up, when he watches his little niece playing. The rest of ourroutine remans pretty much the same: we try to spend more time walking outside,train using various machines and do some physiotherapy.
07.09-13.09.2015 On MondayKostya played well with a ball, wasreacting when we were talking to him. OnWednesday, after a short afternoon nap, he was looking at parents withsurprised expression of his face, as if he was trying to remember something. OnFriday, when Kostya�s niece was visiting him, he was watching her with a smileon his face and was giving her a ride on his leg bouncing it back and forth.Over the weekend, we made some long walk outside. With a visible interestKostya was watching the old Soviet films. When we left Kostya to sit on thecouch alone for the couple of minutes he began to cry.
31.08-06.09.2015 This week haspassed relatively quietly. Kostya catched some cold, so was sluggish and had arunny nose. On Wednesday, the Kostya hit back the ball very well using his armsand feet; with a smile on his face he was watching how his nine-month old niecewas eating. On Friday, he was beatingback the ball very well, and on several occasions did it with both hands. Bythe middle of the week had a very runny nose. On Sunday during the walk mom hasasked Kostya, that it seems that there is nothing to write about this week,only about the fact that Kostya is unwell? Probably by accident, but Kostyapronounced in reply something that sounded like word "Yeah."
24.08-30.08.2015 Nothing unusualhas happened during this week. Kostya slept badly during the nights, so wassleepy during the day time and was not in the good mood. Perhaps this is due tothe change of weather and the arrival of the seasonal rains. On Wednesdayevening Kostya�s mood became better and he played with a ball. One night, heraised his hand up in the air and was exploring it by looking at it for a longtime. Everything else is pretty much the same: Kostya is walking on thetreadmill daily, does his physio exercises with dad daily, and we are trying tospend as much time as possible outside on the fresh air.
17.08-23.08.2015 week passed relatively quietly. On Monday nightKostya slept badly. In the morning Kostya appeared to be very excited. Hesmiled on our request, and also, in our opinion he was reacting to some jokesand humour. On Wednesday Kostya was walking on the treadmill very well and withlittle support, he also was holding his head up high independently. On Sundaymorning, while you sleep, he sat up on the bed, as if its something frightened,and then lay her head on the other side of the bed. Well, that fell out of it.Since the weather was good all week, every day is a long walk on the street.One of the moments of walking in the photo at the fountain near the castle: https://drive.google.com/file/d/0B2_SbPCpvO2kTHIzNWd1bFpLeUU/view?usp=sharing .
10.08-16.08.2015 During the week, Kostya had a few positive moments:on Monday Kostya managed to catch a ball which we threw at him and gave it backon our request; On Tuesday Kostya began to laugh, when mum has offered Kostyato play some clapping game (�Pat-a-cake gam�); On Wednesday Kostya attentivelyand with interest watched some TV programmes; On Thursday Kostya out of thesudden has bursted into tears, and only when we went for a walk his mood hasimproved and he cheered up; On Friday Kostya was very active and excited, hewas smiling a lot; on one occasion he evn stuck his tongue out as per ourrequest and he also was wiggling his toes; On Saturday he was sleepy, however,when mum made a joke and said that Kostya does not pay her any attention helooked up at her and laughed. On Saturday night Kostya slept badly and in themorning Kostya wept bitterly. When we went outside Kostya�s mood became better:he smiled a lot and mumbled something in response to our questions.
03.08-09.08.2015 On Tuesday Kostya had an epileptic seizure and ithappened when we were walking on the street. Luckily it was not very strong andhappened when Kostya was in a wheelchair. On Wednesday we had guests who wereheading back home from Haapsalu to the St. Petersburg. Kostya was in a goodmood (https://drive.google.com/file/d/0B2_SbPCpvO2kQmcxLVlPaEwxYTQ/view?usp=sharing ).In the evening Kostya was watching with a joy and interest his favorite movie"Ivan Brovkin on the virgin soil." Thursday Kostya smiled, gave ahand in greeting, laughing watching the little niece. On Sunday Kostya sleptvery well (which is a very rare occurrence). Nevertheless, during the whole dayon Sunday he was a bit sluggish, sleepy and has fallen sleep early in theevening. Perhaps this is due to the stifling and stormy weather which has asignificant impact on Kostya and he reacts to it very strongly.
27.07-02.08.2015 During the whole week we attended the PhysiotherapySeesions in local narva Surgery: https: //drive.google.com/file/d/0B2_SbPCpvO2kZGp1ZlhKQ3BVY0E/view ?Usp = sharing.
Unfortunately, there were only fivesessions which lasted 30 minutes available, which is not enough. As always,Kostya was very happy to do some exercises and stretches. On Monday, at onDad�s request Kostya gave his hand for a hand shake greeting. For therest of the week, nothing much happened. Due to the bad weather, it is just atthe end of the week we have managed with Kostya to get outside for a long walk.
20.07-26.07.2015 in comparison with couple of previous weeks there arenot as many remarkable news. On Wednesday Kostya played very well with theball, was bouncing back a tennis ball with a racket, tried to put some rings onthe stick (toy for motorics development). On Saturday Kostya was very livelyand active, was smiling a lot when we were talking to him. On Sunday Kostya wastrying to say something, when he saw his sister a with his little niece. Asusual, all the days routines are quite similar. In the morning Kostya does somewalking on the treadmill, then he does some physiotherapy with dad. Afterdinner, we go out for a walk, but while outside we also try to find as muchtime as possible for Kostya walking with little support. After 6pm Kostya takeshis evening medications and watches TV (very often pays a lot of attention tothe programmes and watches these with interest), we read Kostya some books orlisten to the Radio Show. After nine we put Kostya to bed, however Kostya doesnot really like sleeping in the dark, so he sleeps well just in the earlymorning hours.
13.07-19.07.2015 On Monday morning, during Kostya�s massage session,he said loudly "Oh, sh.." From our point of view it is better if hereacts in this way, rather than being silent all the time. On Tuesday andWednesday Kostya did not sleep very well, so has fallen asleep during hisphysio and occupational therapy ( https://drive.google.com/file/d/0B2_SbPCpvO2kR2tkellDSkVvR2M/view?usp=sharing ).Kostya highly enjoyed his physiotherapy sessions and was making considerableeffort while performing the tasks ( https://drive.google.com/file/d/0B2_SbPCpvO2kS0FTVFRYSTI2N1U/view?usp=sharing ),but during one of the lessons he broke into tears and was crying bitterly. Thereason was unknown, but he was comforted by three young ladies ( https://drive.google.com/file/d/0B2_SbPCpvO2kVktuQ0Rsc19PaW8/view?usp=sharing ).Kostya was doing some walking exercises on the standing frame ( https://drive.google.com/file/d/0B2_SbPCpvO2kWU5UQkRkcmRsMG8/view?usp=sharing ).In the evenings we went for a walk to the promenade ( https://drive.google.com/file/d/0B2_SbPCpvO2kY2c1b0hCM3dRQVE/view?usp=sharing ),where we were walking or sitting on the bench. On our way back home on theFriday night Kostya was smiling, kept his head up very well and watched theroad. On Saturday and Sunday we were resting, as well as took a long walk onthe street.
06.07-12.07.2015 On Tuesday we have left our home at around 2:30 pmand in about two hours arrived to Haapsalu, to the Rehabilitation Center.Kostya survived the journey very well. On the first day in the Centre we havemanaged to get a swimming session in the swimming pool ( https://drive.google.com/file/d/0B2_SbPCpvO2kN2FzMkdSWnFDT00/view?usp=sharing ).On Wednesday Kostya was appointed physiotherapy and occupational therapysessions, massage, swimming sessions in the pool. The same sessions repeatedevery day in due course. Unfortunately speech and language therapist turned outto be on holiday. On Wednesday Kostya touched his face with a finger, as if hewas exploring it. After the full body massage session, while he still was lyingon the massage table, he jumped onto his knees and then stood on his feet, sowe had to catch him in order to prevent from falling. Here is the healing powerof massage fully proved. In the evening Kostya spent quite a long time watchinghimself in the mirror.
Kostya loves physiotherapy sessions:
( https://drive.google.com/file/d/0B2_SbPCpvO2kcGJpamlIRlZiRFk/view?usp=sharing ) as well as occupational therapy sessions ( https://drive.google.com/file/d/0B2_SbPCpvO2kQVdkeGJHcnVfdkE/view?usp=sharing ).
It is hard to tell what was the reason,but on Friday night Kostya had an epileptic seizure (the latter was five weeksago). But on Saturday and Sunday he was very open and communicative: he smileda lot, raised his eyebrows on our request, laughed when mum gave him a kissed.On Sunday there was the parade of American cars, which captured Kostya�s interestat times ( https://drive.google.com/file/d/0B2_SbPCpvO2kSE9EOW9iUFp5RGc/view?usp=sharing ),but during some moments Kostya got rather bored ( https://drive.google . com /file / d / 0B2_SbPCpvO2keGYyek9IaHFyTEE / view? usp = sharing). Besides we werewatching how people were getting a ride on a helicopter ( https://drive.google.com/file/d/0B2_SbPCpvO2kc3BpM0ZRUTR6VlU/view?usp=sharing ).
29.06-05.07.2015 > No significantchanges has occurred throughout the week. On Wednesday, when Kostya was walkingdown the stairs, he swaped his legs on our request. On Thursday evening, mumhas called Kostya by his name, he turned his head and stared intently with asmile,without a pause. Kostya does not sleep well during the nighttime, even whenthe eyes are closed, legs are restless and moving. Next week we will be goingto a rehabilitation center in Haapsalu.
22.06-28.06.2015 > This weekpassed quietly, without any bouleversement, except Kostya had a Birthday. Wereceived plenty of Birthday wishes from both the visitors of Kostya�s website(https://webzone.ee/konstantin-eng/?Kostja%27s_condition) as well as visitorsof Kostya Facebook page(https://www.facebook.com/K.Zivetjev). Many thanks toeveryone for their Birthday wishes! We have read out loud all of your wishes toKostya and hope that this will give him an extra motivation for recovery. 24.06our good friend Bronislava came to visit Kostya with her children and forwardedKostya a present � a fruit basket and a beautiful bouquet of flowers for Kostyafrom herself and her support group. Just to mark this moment an attempt to makea poto was made, but so it happened,that at that very oment Kostya was not in a mood for taking a picture ofhimself: https://drive.google.com/file/d/0B2_SbPCpvO2kUHEzdEx6WmhqVTg/view?usp=sharing
15.06-21.06.1015 > On Wednesday,we had a long walk outside. We were listening to the birds songs in the parkand Kostya was smiling, his mood appeared to be good. On our request Kostyawiggled his fingers. On Thursday, While Kostya stood in the doorway he lookedaround and then on our request he began to walk down the stairs and wasalternating his left and right legs, while usually he puts his right foot firstand then brings the left leg over. On Sunday, while being at home, Kostyaplayed very well with the ball, wasbouncing it back with his hands andfeet, and was smiling while listening to the music. When we asked: "Kostyawould you like to eat some cherries?" he nodded in reply. We want to hope that this was donedeliberately.
08.06-14.06.2015 > Nothingparticularly special has happened this week. Except, that on Monday, Kostya hasscratched his nose with his right hand. On Wednesday, Kostya played nicely witha ball, was smiling while he was watching his niece playing. On Saturdaymorning on mum's request Kostya has raised his eyebrows twice. On Sunday, wehad a very long walk outside, Kostya washolding his head very well and looking forward. During the week we did plentyof physical exercises. In the spare time we encourage Kostya to listen to the radio Kostya performances. Soonit is Kostya's birthday (24.06) and we would be delighted to see you or to hearyour greetings.
01.06-07.06.2015 > week was notvery good, because on Wednesday at one o'clock and six o'clock in the eveningKostya had some epileptic seizures. During the rest of the day Kostya playedwell with the ball, was walking outside on the street and held his head highand was smiling. At the weekend the celebrations of the Town's day were heldand Kostya was watching with interest what was happening on the promenad
https://drive.google.com/file/d/0B2_SbPCpvO2kTWVHWEFjUS1CV28/view?usp=sharing>On Saturday, Kostya with his parents went to thenational hiking competition. Moreover, he walked part of the way almost byhimself, but holding hands with dad, who was supporting him and the other parthe travelled in the wheelchair:
https://drive.google.com/file/d/0B2_SbPCpvO2keXcwV2VHY00wVkE/view?usp=sharing
>Unfortunately, Kostya did not win the prizesfor the participants of the tour, but they mom and dad has got them.
25.05-31.05.2015 > On Tuesday, wespent a long time outside and were walking a lot up and down the street. Kostyawas walking by himself with the little help from the dad and holding the headupright, he also looked around a lot. On Thursday, during his session with aphysical therapist Kostya broke into tears and was crying. On Friday night someof Kostya's friends came to visit and it was obvious that Kostya was pleased,he smiled several times
https://drive.google.com/file/d/0B2_SbPCpvO2kNXhUM0FwRUp1RzQ/view?usp=sharing
>On Sunday,we had a session with the dog, though it appeared that Kostya was turning awayfrom the dog deliberately several times and was quite inattentive. In theevening he appeared to be in a cheerful mood and was touching his chin with hisright hand.
18.05-24.05.2015 > On Wednesdayand Thursday Kostya's niece was visiting us. She just turned 5 months old. Kostya was smiling while he watching Polina,tried to stroke her with his hand, laughed, gave her a hand. Periodically, his eyes were welling with tears. To ut thelong story short, it was apparent that Kostya displayed wide array of emotions.When Polina was getting ready to go back home, mom has asked Kostya:"Well, Kostya, is Polina going home now?" Kostya muttered somethingwhat sounded like "yeah" and tried to say something else. OnSaturday, when Kostya went to bed, he was trying to sing along with the dad,who sang him a lullaby. During the week, went a lot outside and were walking ina good mood.
https:// drive.google.com/file/d/0
https://drive.google.com/
>11.05-17.05.2015 > Overall, theweek went pretty well, except that on the 15th of May Kostya had some epilepticseizure. On Tuesday Kostya paid a careful attention while he was listening tothe Pushkin's "Eugene Onegin" audio book. During the day he walked upand down the stairs on his feet. On our request he raised his head severaltimes and looked at the road. On Wednesday night, Kostya had a nightmare andsaw something scary, in his sleep he sat upright on the bed and gripped the bedrailings with both hands. During the daynap, while being half asleep several times Kostya said: "And m ..."Kostya loves to watch his little niece and always looks at her with a smile.Normally, on the next day after the epileptic seizure Kostya is very responsiveand alert. On Saturday, the 16th of May, Kostya smiled at all of his hisrelatives, it was apparent that he reacted when he saw a mug, which he hadbrought back from one of his trips and gave it to her sister as a present. OnSunday Kostya was walking very well independently while being outside, wasgiving a hand for the greeting and was playing and catching the bubblesproduced by the bubble blower.
04.05-10.05.2015 > On TuesdayKostya was in a good mood. He was cheerfully smiling when some cheerful phraseswere spoken out loud by us. On Thursday,when his mother gave him a spinach leaf Kostya made unhappy expression on hisface and muttered something what sounded like "I do not want". In theevening, Kostya was watching with the interest the movie "The Taming of theShrew." On Sunday, the weather was very nice and Kostya walked arm in armwith a dad, and was holding his head independently very well. The whole week wewent to Ozokerite treatment sessions. Twice a week Kostya had physiotherapysession with a physiotherapist. During the week Kostya managed to walk 1,600meters on the treadmill independently each and every day.
27.04-03.05.2015 > This week haspassed without any bouleversements. On Monday, Kostya took some nuts and appleusing his hands, he even picked up some flat-shaped rabbit, a part of thewooden toy. On Tuesday, Kostya was in a good mood: played very well with aball, was smiling a lot. As always, he laughed when he went to bed and dad sanga lullaby. On Saturday, while Kostya was sitting at the table he raised hishand on our request and tried to wave with his hand. On Sunday, the weather wasgood. We went for a long walk in a wheelchair, but Kostya also was walking onhis feet. Kostya was pushing the wheelchair independently holding the handles: https://drive.google.com/file/d/0B2_SbPCpvO2kWEV3eEplZ2l5WWs/view?usp=sharing , https://drive.google.com/file/d/0B2_SbPCpvO2kSVBaSjlnVEVGNEU/view?usp=sharing . >During the week Kostya had two treatments withOzokerite on his hands and twice had hissessions with a physiotherapist.
20.04-26.04.2015 > On MondayKostya reached out with his right hand, touched his face and rubbed his cheek.On Tuesday night Kostya did not sleep very well, or rather, did not sleep atall until four o'clock in the morning. During the day mom was trying tomotivate Kostya to talk to her. She asked: "Kostya can you talk to meplease or are you mute?" Kostya said something in reply and smiled. OnThursday, he laughed when Mom was filling a ball with the air. Worked really wellwith a physiotherapist and was hitting back a tennis ball. On Friday, we wentwith Kostya to one of local care homes (it is not far from our house) to findout what rehabilitation services, you can get there. We agreed to conduct 10Ozokerite treatments sessions in order to remove the spasticity of hands.
>13.04-19.04.2015 > Our stay atthe Institute of Human Brain is continuing. On Monday Kostya had his heartelectrocardiogram done as well as had few injections. Then we were visited aphysiotherapist, she was praising Kostya and complimenting him on hisachievements, she also said, that if Kostya is walking and able to eat byhimself then how possibly it can be called little awareness? After returning tothe ward Kostya cheered up and a smile appeared on his face. During the entireevening Kostya was responding to the conversations and also was raising hiseyebrows on our request. We had a feeling, that Kostya understands everything.On Tuesday Kostya had �erebrospinal fluid (CSF) transfusion - anoperation when the cerebro-spinal fluid obtained from the donor was changed. On Friday, outside the institute, Kostya had the stem cells injected.
06.04-12.04.2015 > On Mondaymorning we departed from Narva and at 7.30 am we arrived to the Institute of Human Brain in St. Petersburg.The in-patients �6 was ready for us. On Tuesday Kostya had his blood test andcardiogram done, doctors checked the condition of the brain vessels (everythingis alright), as well as performed checks on conductivity signals of themuscles. Injections of Tseraksona, Cortexin, Kokarboksilaz and Solcoseryl were prescribed. When Kostya hasfallen asleep, then he said something in a dream what mum heard to be:"Let's go." On Wednesday morning, Kostya turned his head when wecalled him by his name. Refused to eat pasta, which he never liked anyway. Inthe evening, was trying to say something. When mother asked him to speak moreclearly, Kostya began to chant louder.On Friday, a two-hour video monitoring was performed in order to adjust themedications for the treatment of epilepsy. Over the weekend, we went outsidefor a walk on the Institute territory. The weather was good. Kostya was walking veryt well on his feet and heldhis head high. This week is remarkable by the fact, that five years ago on the10th Of April, Kostya had an accident.
30.03-05.04.2015 > Earlier thisweek, Kostya was sleeping badly during the nights, during the day he became agitated, then arunny nose and cough emerged. On Friday, with a smile on his face Kostya waswatching how his niece was fed and then Kotya began to cry. In the evening wastrying to assemble a toy pyramid and cubes. Kostya was laughing when we toldhim that he was sitting in a "The Thinker's" pose. On Saturday, whileKostya sat at table, suddenly he reached over and picked up a banana byhimself. On Sunday, we had a short walkoutside and then during the whole evening we were preparing staff for our tripto the Institute of Human Brain.
23.03-29.03.2015 > Generally thisweek passed uneventfully, but on the weekend Kostya was communicatice: he wassmiling a lot, on numerous occasions gave us his hand at our request, listenedattentively to what was said by others: https://drive.google.com/file/d/0B2_SbPCpvO2kLW5odGNzekxmTm8/view? Usp = sharing. OnSunday, we were walking around our house, as well as climbing the stairs bothstraight and sideways. We have received a letter from the Institute of theHuman Brain informing us that they cannot admit us at the planned time theyoffered before (from 6/04/2015), although Kostya already has his visa andinsurance done, and dad had to book an annual leave for week in order to go fora treatment in St. Petersburg. We will try to arrange for the treatment to beconducted at the planned dates in April (for two weeks), as we would not wantto be in the Institute of Human Brain during the local May Day celebrations.
16.03-22.03.2015 > No significantchanges has happened during this week. On Monday, Kostya played ball game withmum very well. On Tuesday we walked with Kostya outside for about half of hour.On Wednesday evening Kostya had not very strong epileptic seizure. On Thursday,on mother's request Kostya was moving his fingers and toes. In all otherrespects everything is the same way: during the nights Kotya sleeps badly;twice a week we have physiotherapy sessions with a physical therapist; daily wedo some extra workout using the machines at home. We have received aninvitation to the Institute of the Brain and going to St. Petersburg from the 6April 2015.
09.03-15.03.2015 During this week Kostyawas more lively and active. On Wednesday, he took a cup of cottage cheese andate with a spoon independently. On Thursday, Kostya smiled, a lot, was tryingto answer the questions, frowned his eyebrows upon request, wiggled his toes,was performing an energetic and rhythmic handshake reacting on the word"hello". With visible delight and a smile Kostya was watching herniece, when she tried to roll over from her back to the stomach and back. OnSunday, upon dad's arrival home Kostya stretched his hand for a greeting.
02.03-08.03.2015 Kostya's flu has finallycleared away, so in that sense Kostya's health has stabilised more or less. Onone of the days mum intentionally stood in front of Kostya obscuring the TV andKostya began to try to peek out trying to watch some sports programme. During the next week we are expecting to receive the referral tothe Institute of Human's Brain St. Petersburg, which we are planningto visit in April 2015. Professors from the the Institute propose the injectionof the stem cells in line with the following patent http://www.freepatent.ru/patents/2293565 ,transcranial direct current stimulation , cerebrospinal fluid replacement. Ifsomeone came across these techniques before we would appreciate if you couldshare your treatment experience and provide some feedback? In all otherrespects everything remains the same.
23.02-01.03.2015 During this week Kostya wasnot particularly well: he was coughing, however, the temperature did not riseabove 37 degrees. On Monday Kostya was in a good mood. He was watching hisniece, who has already turned three months, with an interest. This week Kostyawas sleeping throughout the nights much better than on a previous week.Otherwise, nothing special has happened. Twice during this week Kostya hasworked with a physiotherapist, during the rest of the time Kostya wasexercising with dad and walked on a treadmill 1600 meters every day.
>16.02-22.02.2015 > On Mondaynight Kostya had a mild epilepsy. And, as usual, on a day after the seizureKostya appeared to be in a good mood:https://drive.google.com/file/d/0B2_SbPCpvO2kV0xFUmo3bVlTZFU/view?usp=sharing,he was cheerful, adequate, was trying to answer our questions and to performsome actions as instructed. During the rest of the week nothing extraordinaryhas happened. Kostya had a very bad night sleep during the whole week and evenwhile fast asleep was still trying to move his feet. We made an enquiry foroutpatient visits for Rehabilitation centre in Haapsalu. In Russian language,terms rehabilitation treatment and the rehabilitation have the same meaning. Inthe Estonian medicine these are two different concepts: rehabilitation treatmentis 5 days, which should be claimed through the pension office (money from thebudget, which are very scarce resource and there is not enough), and hence ithas become ambulatory treatment, but rehabilitation treatment - 10 days (isstill inpatient) and should be made by a referral from a GP and is paid by thehealth insurance funds, meaning that in this sense everything remained thesame. So due to this clarification in the beginning of July, as planned, wewill be visiting Haapsalu Rehabilitation Centre.
>09.02-15.02.2015 > On MondayKostya was listing attentively to the poems of Pushkin, with a smile on hisface he was watching his mother and a small niece (who soon will turn threemonths old), played very well with a tennis ball. On a Tuesday evening duringthe dinner Kostya took away the spoon from a mum and began to eat by himself.On these couple of days Kostya slept badly. On Thursday Kostya was a bitnervous and was crying, was cheered up by playing a ball with a mum very well.We always enjoy to watch how Kostya smiles when Dad sings him a lullaby atnight. At the end of the week, Alexander, a spokesman from the "NarvaUnited" football team, forwarded us an additional donation of 200 euros,which was collected for the Kostya's treatment during the match with a Tallinnteam called "Cosmos", and also these two team gave us their presents:the FC scarves and the"Space" team t-shirt (last time formerly Kostyareceived a present with �Narva United' team t-shirt). We would like to thankheartily for all your help and gifts. We wish local "Narva United" team plenty of luckand more sport achievements to come.
>02.02-08.02.2015 > This week haspassed quietly, without any unexpected events. We keep on using the trainersfor some physical exercises, as well as still have some physio sessions with aphysiotherapist. Kostya was trying to some eat potatoes, cereals and nuts byhimself: http://youtu.be/0R-HI_YA_jQ, http: //youtu.be/SMJqOGDZjX4once Kostya swore neatly during the night. We try to spend as much timeoutdoors as possible. We have received a letter from Haapsalu RehabilitationCenter, informing that from the 1st of April 2015, the Center will providerehabilitation services only on an outpatient basis (we were referred to thiscenter in July 2015). So from now on it turns out that the bedridden patientsand the patients in wheelchairs must rent an apartment in Haapsalu in order tobe able to come to the procedures by themselves and receive some services inThe Haapsalu Rehabilitation Center. Probably the National Health InsuranceServices had run out of money.
>26.01-01.02.2015 > This weekKostya was sad, inactive and was not sociable. On one of the ne evening hecried. Perhaps this is related to the occurrence of magnetic storms or weatherconditions? Kostya was taking some small objects independently using his rightand left hand, was playing with the ball: http: //youtu.be/_jCmv1y2WK4.Kostya has had four manual massage sessions, continued to exercise with aphysiotherapist. Almost every day we managed to get outside for a walk.
19.01-25.01.2015 The week has started not very well: on Monday, while returning from awalk outside, in the house hall Kostya had an epileptic seizure. Luckily it wasnot very strong. On Tuesday Kostya was in a good mood: he smiled a lot, paidattention and listened very well, while mum was reading a book out loud to him;turned his head when we were calling out Kostya's name and was trying todraw with his finger on the tablet. On Wednesday night Kostya did not sleepwell, however despite almost the sleepless night next day he was communicative:on mum's request he raised his hand up. On Saturday, mum has asked:"Kostya, would you like to help me to do some clean-up in theapartment?" Kostya sheepishly mumbled something (probably it meant thatmother would have to do all the cleaning by herself). In the evening after somewalk he took bread with his left hand, and then using his right handindependently.
12.01-18.01.2015 OnMonday Kostya played well with a ball and was smiling frequently. On Thursday,while walking downstairs, on Dad's request Kostya switched his leg. NormallyKostya puts down his left leg first and then brings the right leg across to thesame stairs. This time, as per dad's request, Kostya put down his right leg onthe step and then without bringing the right leg on the same stair he walkedstraight to the next stair with his right leg. Otherwise it was a quiet week.
05.01-11.01.2015 The most important event of this week took placeon Saturday the 10th of January. On this day the Narva United FC wasraising some funds for Kostya treatment during their match with Rummu Dünamo.During this eVENT 803 euros were raised. On arrival Kostya was smiley and wasin a good mood. But later on he became a bit tense and stressed due to theamount of people and the noise in the hall. At this moment we were worryingthat this might trigger an epileptic seizure. After sometime Kostya relaxed abit and everything went fine. You can take a look at some video and photoeshere: http://l.facebook.com/l/H
During this week we did not have any significant changes. On Sunday Kostya didnot want to wait until we are going to feed him and took some minced crepe fromthe plate independently. During the evening Kostya was bouncing off the tennisball very well and played nicely with a large ball.
29.12.2014-04.01.2015 The NewYear has come. Kostya has spent the New Years Eve with his family. As usual, weput Kostya to bed at around 10pm. But he could not fall asleep due to the loudfireworks sound (due to the time difference firstly people were celebrating theNew Year in Russia, and then 2 hours later � Estonian New Year). So Kostyacould not sleep very well on that night. On Friday Kostya was watching hisniece Polina, who is now a little more than 1 months old. In the evening Kostyawas trying to draw on the Tablet using his finger. On Sunday he woke up in abit nervous state, but after the walk on the street he calmed down and becamevery adequate and communicative: he found mum with his eye on our request, gavehis hand for the hand-shake. During this week we have managed to get outsideevery day, however the weather was not always good. Father as a registered Kostya's carer had to submitannual report to the Social Department of the local Borough Council. Only onthe following things alone: medicines, trip to the St. Petersburg Human BrainInstitute; staying at the Haapsalu Rehabilitation centre; urine collection bags(which we order from Germany) and buying of the Motomed trainer we have spent7,640 euros last year. All this was possible only thanks to all the people whohave helped and keep helping us to the present day. We would like to say a hugethank you to all of you.
22.12-28.12.2014 nothing exceptional has happened during this week. OnWednesday night Kostya slept peacefully. In the afternoon was playingball with the dad. On Friday night said some not too bad swearword. On Saturdaywas very excited. When we laid Kotya down on the floor on his stomach, he stood up with little support on his feet. All days are like one another. Atabout 6 am Kostya is taking some medicines, at 10 am we are feeding Kostya,then we are walking on a treadmill and do some physical exercises with dad until12 am. About two 1 pm o'clock in the afternoon we are having luch and gooutside for the 2-hour walk at about 2 pm, then feeding, after that taking somepills at around 6pm and then another routine feeding. In the evening, usuallywhen dad is still at work, mum plays the ball with Kostya, readshim some books or trying trying to entertain Kostya in other possible ways.Last feeding Kostya has at 9 pm and then we put Kostya to bed. Thus ends ouryear 2014.
We would like to thank all the people whohelped us and keep helping us and wish you all happiness, success, fulfilmentof all your dreams and health to you and your loved ones. You can remember whatKostya's year was like if you follow the link: http://youtu.be/_wXikpZIImY15.12-21.12.2014 OnSunday night Kostya did not sleep well . During the day heindependently picked up some nuts from the table as well as clementins and atethese. On Tuesday we gave Kostya a spoon and he ate some cottage cheese from heplate all by himself. He managed to do it quite well. On Thursday andFriday Kostya played some ball game with mum very well. In the evening hemumbled something. It seems that Kostya mixed up day and night: He is sleepingduring the day and he is very restless during the night. So even on Sunday hefallen asleep just before our session with a dog. We continue our trainingsessions with physiotherapist as well as on training machines at home.
08.12-14.12.2014 On Monday Kostyaplayed with a ball very well: he was kicking the ball in turns using his handsand legs, gave the ball back on our request. During the day time Kostya wastrying to pronounce something. In Tuesday Kostya was playing with the ball againand demonstrated some excitement and happiness when mum catched the ball.Kostya managed also to kick back the tennis ball very well. On Friday nightKostya did not sleep well, this has triggered some epileptic seizure.Fortunately the epileptic seizure was not too strong. During the weekend wemanaged to spend long time outside. Two times during the past week Kostya hadhis physiotherapy sessions with physiotherapist. In addition to this Kosya waswalking for 1.5 km on a treadmill every day.
01.12-07.12.2014 At the beginning of the week Kostya was in a good moodfor quite a while: he was looking at his niece with a smile on his face, whoturned just 1 week old; on Kostya's mum's request Kostya was trying to lift hisright hand and left leg; was also trying to pronounce some sounds. On WednesdayKostya played with a ball very well, took an apple and some cookies from thetable by himself. Before the sleep dad has asked Kostya to close his eyes.Kostya fulfilled the request twice. On Thursday after the shower we askedKostya to dry his feet with a towel and Kostya was stamping his feet on thistowel. During Friday daytime Kostya was crying. In the evening we watched someTV programme and as it appeared to us Kostya was smiling during all the rightmoments. He was watching the news afterwards with a serious look. On SaturdayKostya wept bitterly. On Sunday Kostya enjoyed his session with a dog verymuch: he was monitoring the dog's actions with his eyes and was smiling. Duringthe week we carried our sessions with physiotherapist, as well as were doingsome exercises and using trainers at home independently.
24.11-30.11.2014 This week has passedrelatively quietly. On Thursday night Kostya slept well. During the day happilyand with enthusiasm played with a ball: he was kicking the ball using his armand leg, played with a tennis ball using a tennis racket. On Friday Kostya didvery well while picking up the nuts from the table using his left arm. AlsoKostya has attempted to take some cottage cheese from the plate using his handand a spoon. During the Saturday night at five o'clock in the morning Kostyahad a mild epileptic seizure. In the afternoon we planned to go out and havesome session with the dog, but could not go outside due to the broken lift.Twice a week had some physiotherapy sessions with a physio therapist
17.11-23.11.2014 On Wednesday we have shown Kostya some different images, he was looking atthem without demonstrating particular interest. However, when we put a pictureof a kayak in front of him he held his eyes for longer and even bent his headslightly to see it better. During one of the nights Kostya swore and madeparent happy with the fact that he said something. The rest of the week went asusual, except that on Saturday night Kostya became an uncle, as Kostya's sistergave birth to a little baby girl.
10.11-16.11.2014 All days are different and unlike one another: during some days Kostya is very calm, during the other days he is very excited.On Monday Kostya aunt came to visit Kostya. It was evident that Kostya was veryglad she came, he was looking at her and smiling. On Wednesday night Kostyaslept well, in the morning he appeared to be in a good mood and merry. In theevening Kostya played some ball-game with his mum using his right arm and legto kick the ball back to mum. On Saturday Kostya was playing with the ball verywell: ( https://drive.google.com/file/d/0B2_SbPCpvO2kdFBJNWFoR1Y5WTA/view?usp=sharing ).On Sunday mum moved her cheek closer to Kostya and asked him to give her a kissand Kostya managed to do it quite successfully. We we walking the dog again:Kostya watched the dog, was turning his head monitoring dog's actions, wastrying to stroke the dog and was holding the dog by the collar.
03.11-09.11.2014 The weekpassed uneventfully. None of important events had happened. On Monday Kostyawas sleepy. In the evening Kostya has stretched his hand in order to shakehands and to greet dad. On Tuesday Kostya was a bit excited and restless, hadsevere spasticity. We took a walk and for the whole hour Kostya was walkingwith dad among the steet. On Thursday night Kostya did not sleep well, so hehad some day nap during the day. On Sunday we went for a walk with the dog.Several times Kostya tried to stroke the dog as was watching as the dogobediently executed some commands. However occasionally he was losingconcentration and stopped paying attention to it. Twice a week Kostya had hissessions with physiotherapist, we also did some exercises independentlywith Kostya on the trainer.
27.10-02.11.2014 During the beginning of the week Kostya had adisturbed sleep. On a Wednesday night he said some swearing word and woke uppretty nervous and restless. In order to calm Kostya down and to remove theexcitement we are trying to increase his physical activity: put him to walk onthe treadmill or give him to rotate the hand grips of Motomed ( the handtrainer). This week during the walk with a Dad Kostya walked hand in hand for 1hour (from the former slaughter house to the end of the upper promenade). OnFriday Kostya was in a good mood: he looked at everyone and was trying topronounce something. On Sunday he was sleepy all day long. Perhaps it was dueto the rainy weather. During the week Kostya had 2 sessions with aphysiotherapist.
20.10-26.10.2014 It was a positive week. On Tuesday evening on ourrequest Kostya was lifting his hand quite a few times. He also was trying towave with his hand: https://drive.google.com/file/d/0B2_SbPCpvO2kTllNM0FreVNPQkE/view?usp=sharing
When mum asked:'Would you like to finish your tea?' Kostya pronounced somethingthat sounded like negation. On Wednesday few times Kostya was stretching outhis hand for greeting. On Saturday we walked with a dog once again. But thistime Kostya was apathetic (perhaps it is due to the fact that Kostya did notget enough sleep during the night.
However Kostya was turning his head andwatching the dog, unclenched his fingers in order to touch the dog. In theevening at home wept bitterly. Twice a week Kostya engaged with aphysiotherapist at home and also walked on the treadmill, was spinning armstrainer and did some exercises.
13.10-19.10.14 On TuesdayKostya independently took some apple pieces from the table; was kicking theball which mum was throwing at Kostya with his hands and legs. During this dayKostya had a good mood,was trying to pronounce some sounds. On Wednesday Kostyahad some mild epileptic seizure ( last one took place 1 month ago). During thisweek he was doing really well during his sessions with physiotherapist. OnSaturday we received a phone call from Regina ( Kostya's friend) who has aspecially trained dog and she offered to go for a walk together. In thebeginning Kostya was cautiously watching how the dog was obeying the commands,was bringing the ball back, carrying the bag. But gradually he relaxed andbegan to smile and was turning his head watching the dog's actions, was tryingto stroke the dog.
https:// drive.google.com/file/d/0B2_SbPCpvO2kRnU2a28wdlI3QVE/view?usp= sharing ,https://drive.google.com/file/d/0B2_SbPCpvO2kMDBLOERaTjBXTGM/view?usp=sharing ,
https://drive.google.com/file/d/0B2_SbPCpvO2kZTgzLXRCM3BfekE/view?usp=sharing ,
h ttps://drive.google.com/file/d/0B2_SbPCpvO2kMWY0dmFxcjd0LVE/view?usp=sharing .
In the evening Kostya was in a good mood: he waswathing the parents all the time, was smiling and was trying to open his mouthin order to say something. Parents would like to express the sincere appreciationand the deepest gratitude to Regina and Bronislava, who made Kostya such awonderful present as spending time out with a dog and getting close to theanimal.
06.10-12.10.2014 On a Monday nightKostya had a disturb sleep. He woke up very excited and worried. During thebreakfast Kostya was crying really hard and said something what sounded like'where?'. On Thursday Kostya has tried independently to eat with a spoon,turned out not so well yet, but we will keep on trying. He managed very well totake some items with his left hand all by himself. Kostya was 'communicating'with mum: was smiling and muttering something, while mum was telling somefamily stories from the past, was drumming with his fingers on a computerkeyboard and was laughing during this process. Kostya also listed carefully tothe songs and paid attention while listening to the radio play(spectacle).
29.09-05.10.2014 On Monday and Tuesday Kostyawas in a good mood: he was trying to pronounce something and was smiling whenmum was talking to him. On a Tuesday night he was restless and did not sleepvery well, so next day he appeared to be a bit gloomy and unsmiling. On Thursdayevening he was very excited and we were worrying, that an epileptic seizuremight happen after this. Luckily it did not happen and everything was fine. OnFriday, during the feeding time Kostya did not wait when he will be givensomething and took some raisin bun all by himself. On a Friday night he saidsomething while he was still asleep. One time he said some swear word. Duringthe evening he was serious, but when dad started to sing some songs Kostyabegan to smile.
22.09-28.09.2014 During this week Kostya did not do anythingparticularly exceptional. Week went normally and quite uneventfully. Kostya hastwo sessions with a physiotherapist throughout this week, and also was walkingon a treadmill, spinning Motomed with his hands (a machine for training handsand legs muscles). When we first had a chance we went for a walk, Kostya waswalking arm in arm with Dad.
15.09-21.09.2014 This week was very positive. On a Monday morningKostya was playing with mum very well, he was trying to copy her facialexpressions and mimics. On Tuesday he reacted when we made some jokes and wassmiling a lot. On Wednesday he took some raisin bun from the table all byhimself and ate it. With interest and passion he played some ball game withmum. Kostya also was trying to play glockenspiel with his left hand. OnThursday he was picking up some apple slices with his right hand, with greatexcitement watched some soap bubbles and was trying to catch them. On SundayKostya was paying very good attention when watched the kayaking slalomcompetition on a telly. Two times during this week physiotherapist came tovisit Kostya at home and to have some sessions.
08.09-14.09.2014 On Monday and Tuesday Kostya was very excited. When we went outside hewalked continuously for about 1.5km and we walked not only by the smooth footpath surface, but also on the uneven roads with small holes and with someincline. On some occasions Kostya lifted his head as per our request andwatched where he was going and what was in front of him. Three nights in a rowKostya slept well. On Sunday Kostya was in a good mood. He was cheerful andwith joy picked up some grapes from the table by himself, on our request he wastrying to unclench his fingers and was moving his lips and it looked like hewas trying to tell us something.
01.09-07.09.2014 On Monday KostyA was in a good mood: during our walk he was lookingaround with an interest, revitalised and was smiling when he was spoken to byother people. On Wednesday Kostya was trying to say something, drunk fromthe cup independently and very well, with his right hand picked up some smallobjects from the table. On Saturday we went to the forest. Kostya sat in hiswheelchair and was listening to the book his sister read him out loud. WhenKostya saw that mum comes out from behind the trees he began to smile. At 5:30pm Kostya had a minor epileptic seizure.
25.08-31.08.2014 We have completed our physiotherapy sessions in the hospital. Kostyaloves being physically active and highly enjoying his exercises. Throughout the week Kostya was holding his head very well when we wentoutside. He was watching with interest the surroundings and the cars which werepassing by. When mum asked Kostya: "How we are going to cope now, as dadhas to return to full time work?" - Kostya answered with a smile.
18.08-24.08.2014 On a Tuesday night Kostyaslept well. He woke up being cheerful and happy and was trying to pronouncesomething. On Saturday he took the ball out of the box by himself, but droppedit. He did help to pick up the ball with his left hand. During the night hesaid something, while he was asleep. During the whole week we went to aphysiotherapy lessons, where we mainly did some stretching exercises thisweek..
11.08-17.08.2014 On a Tuesdaymorning when Kotya woke up mum said: 'good morning!'. Kostya began to smile andwas trying to say something, his lips and eyebrows were moving.
Mum asked Kostya 'do you want to tell me something? I have to go to the kitchenfor a moment. You think about what you want to say and when I will return yougoing to tell me everything'. After a while Kostya shouted: 'A-a-a'. Mumrushed back from the kitchen and they both had a laugh with Kostya. OnWednesday morning when we were brushing Kostya's teeth Kostya was trying topronounce something. We heard a word : 'which'. On Friday Kostya picked thegrapes all by himself and put them into his mouth. On the rest of the days hewas sluggish and inert.
04.08-10.08.2014 Last week Tatyana (whois from Narva and currently lives in Norway ) made Kostya a present � shebrought him a waterproof warm cover for Kostya's wheelchair, so now he willfeel even more comfortable when the weather is not brilliant outside. Wealso went to the dentist. Kostya did not want to pen his mouth, but in the endthe doctor managed to perform a general check-up on Kostyas teeth andalso to put some dental dam.During our walk Kostya was actively reacting on a dog: was smiling andmonitoring what it was doing. On a Saturday morning dad asked Kostya whether heis planning to go for a walk today. In response Kostya was trying to pronouncesomething. In the evening Kostya had some minor epileptic seizure.
28.07-03.08.14 An interesting thinghas happened on Monday. Sometimes during the night-time we put some sleep eyemask to cover Kostya's eyes. In the morning Kostya took his mask of and when hesaw a dad he began to smile. On Thursday we went to a small trip to the lakebehind the Jõhvi town. Kostya was merry: http://youtu.be/dIvp2SIbFOg . The water in the lake was quite warm, so we walked on a water and evenswam a little bit with Kostya. Kostya enjoyed swimming a lot. When Kostya'ssister comes home to visit us all Kostya looks at her with a smile and watcheswith an interest what she is doing. This week Kostya has his finalphysiotherapy sessions and we took a referral from the GP.
21.07-27.07.14 During our stay inHaapsalu Kostya slept very well, but on arrival back home his sleep becamerestless again. We moved Kostyas bed to a slightly different location andchanged its position. Not sure whether it directly responsible for a change,but Kostya began to sleep better.
On Tuesday while sitting by the table Kostya raised his hand � it seems like hewas trying to show something outside. On Friday during our walk outside atapproximately 5pm Kostya had a minor epileptic seizure which did not last long.The last epileptic fit Kostya had exactly 2 months before. Surely it wasrelated to a very hot weather outside. On Saturday the parents had toleave Kostya for a while with a carer (a family friend), as they had to attendtheir daughter marriage registration ceremony. When the parents went back homeKostya was happy to see them and began to smile.
14.07-20.07.2014 We continued Kostya'streatment in the Hapsaalu Rehabilitation Centre. On Monday Kostya had his firstsession with speech and language therapist, where Kostya also had a nice facemassage session. After a short day nap, Kostya said some sentence and he wasvery focused and confident, but unfortunately we did not get it. His looked atus meaningfully and smiled with his eyes. In comparison with sleeping patternat home, Kostya slept well during the nights in the rehab centre. Maybe it islinked to the abundance of physical activities and also the walks in a freshair. We also continued Kostya's sessions with ergotherapist where he waslearning how t drink from the cup: https://drive.google.com/file/d/0B2_SbPCpvO2kSHFFZkZ4Rk1SLXM/edit?usp=sharing . Kostya enjoyed a lot his sessions in the swimming pool: https://drive.google.com/file/d/0B2_SbPCpvO2kREVOSWk3aDdKVEU/edit?usp=sharing , https://drive.google.com/file/d/0B2_SbPCpvO2kRl9NczAwZVlFX0U/edit?usp=sharing .
When we had a free time we went on a promenade andKostya felt exceptionally well: https://drive.google.com/file/d/0B2_SbPCpvO2kdi1UVDBueU1saG8/edit?usp=sharing
On Thursday Kostya's 10 day visit to HaapsaluRehabilitation Centre came to an end. We got back home at around 11pm andvisited our good friends on a way home. On Saturday on a stadium Kostyaindependently made 40 steps, all by himself. During that day he responded verywell to the humour.
07.07-13.07.2014 On Monday we went to HaapsaluRehabilitation Centre and arrived there at 3 pm. After the examination bydoctor and a a general check-up Kostya was assigned some treatments. During theweek we had 4 physiotherapy sessions, 3 sessions with ergotherapist (thetreatment of disease by physical work and recreation), 2 sessions of massageand 3 sessions at the swimming pool. Regretfully, the speech and languagetherapist was on annual leave. Kostya enjoyed a lot the sessions in theswimming pool. On Tuesday the swimming sessions made Kostya feel very relaxedto the point that has fallen asleep during his session with ergotherapist,which followed.
During the evenings we went on a promenade, took a walk around some small locallake. The weather was nice, and the site had many places where we could stopand rest. On one of the evenings Kostya was holding his head exceptionallywell, was very alert and was watching around with an interest, he also turnedhis head when we were calling him, gave his hand and raised his eyebrows coupleof times on request. Kostya was in a good mood throughout the week: he smiled alot, especially when we sang some songs to him. On Saturday Kostya ' s friends from Tallinn hasvisited him .
30.06-06.07.2014 Kostya's mood is different everyday: sometimes he is happy, the next day he is sad or even apathetic, the day after he is very energetic and excited. On Moday Kostya was rather sad, but was holding his head very well independently when we walked outside. On Tuesday during the physio therapy sessions Kostya began to cry. In the evening we watched a comedy called 'Three plus two' and Kostya responded well to the jokes: sometimes he cried and sometimes he laughed. Was very responsive and lively. On a Thursday morning and during the day he behaved in a very appropriate manner and adequately responded when we were talking to him, was trying to answer the questions and was smiling a lot. Night sleep is disturb and Kostya is restless during the nights. On Saturday made 30 steps completely independently while walking. He was trying to walk straight, but not always it was easy. On Sunday he was sleepy all day long.
23.06-29.06.2014 On Tuesday we celebrated a little bi Kotya Birthday a home with family members only. We read your birthday wishes to him and will read your warm warm words to him time to time. Unfortunately we cannot say, that Kostya has had some special reaction while he was listening to the birthday wishes. But like always he was crying when we turned on his favorite trip songs on the computer. It was quite quiet week. Three days Kostya managed to sleep well. Twice a week physiotherapist visits Kostya and does some physiotherapy sessions at home. Kostya responds very well to these sessions and build up strong professional relationship with his physiotherapist. On the 7 th of July we will be visiting the Haapsalu Rehabilitation Center.
16-22.06.2014 Nothingremarkable has happened during the first half of the week. On a Wednesday nightKostya slept well and finally got enough sleep. After his physiotherapysessions Kostya was holding his head well independently, picked some fruitsfrom the plate using his hands, when mum was asking some questions Kostya wasmuttering something back. On a Friday morning when neighbors began to do somerestoration works and to drill the wall, Kostya said some phrase, whichconsisted of approximately 6 words. During the day an interesting event hashappened: Kostya was walking on a treadmill and tilted his head a little bittoo much, so he accidentally pressed the acceleration button and the beltspeeded up at least two times, so Kostya had to jog a little bit, which he didbrilliantly well. On Saturday and Sunday Kostya responded well to the humor.10.02-16.02.2014 On Monday we put Kostya to lay down on his tummy. Thensuddenly he sat up on his knees and after this he got up on standing on hislegs by himself, so we barely had a chance to support him. When Kostya isexcited he does his physio well, spins the trainer pedals and handles, kicksthe hanging ball with his feet and hands. Yet again (this situation hasoccurred previously) Kotya was crying when he listened to the song ' YellowGuitar Curve') of his favourite artist Mityayev. On Sunday Kotya was smiling alot, was trying to pronounce some words and sounds, played well with Dad. Restlessduring the nights and does not sleep.
03.02-09.02.2014 Kostya'smood was constantly changing: sometimes he was very excited and vivacious, butother days he appeared to be rather apathetic. Perhaps these frequentalterations are linked to the weather changes. When Kotsya was full on energyand excited he was doing some physio, spinning trainer's pedals using his handsand legs. He was looking at mum as per her request, gave her a hand when sheasked him to do so. When mum was reading aPushkin's fairy-tales Kostya was listening very carefully. DuringFriday night he was sleeping well. Next day was smiling a lot and was mutteringsomething. Was holding spoon well and raising it independently, ate a platefulof cottage cheese.
27.01-02.02.2014 On one of thedays Kostya was kicking the football ball well, played with a tennis ball and aracket. During the few days in a row Kostya was very restless and excited andon Thursday, the 30th of January, he had two epileptic seizuresat 4pm and 6:45 pm (one was stronger, than another). Didn't sleep well duringthe nights, kept throwing off his blanket although it was notthat warm in the room. We continued our sessions with speech and languagetherapist, but this week Kostya did not do something outstanding. Due to the increased workload at Dad's workplace we could not go to the gym andtherefore we exercised using a trainer at home . 20.01-26.01.2014 Nothing outstanding hashappened this week. We had some episodes, when Kostya ate very well using aspoon, was taking nuts with his hand, holding head nicely, was playingglockenspiel. Due to the doctor sickness the speech and language sessions werecancelled. At home we did plenty of physiotherapy and trainer sessions. Duringthe Saturday night Kostya nearly fell out of bed, he screamed, raised suddenlyand sat on the bed. It looked like something frightened him. We comfortedKostya helping him to calm down. On Sunday he was smiling a lot and wasmuttering something. Overall it was pretty ordinary quiet week. 13.01-19.01.2014 On Monday Kostya respondedcorrectly, when speech and language therapist asked Kostya to point at theimages, where mum cooks the dinner and then where dad reads the newspaper.During most of the nights Kostya did not sleep well.23.12-29.12.2013 The last weekof the year has finished. However in a last few days we had some adventures. OnSaturday and Sunday Kostya was very excited. We reacted quite late inresponse,that Kostya pulled his gastrostomy out. Through it we usuallyadministered some soluble medications at 6 am, when Kostya was asleep. Wecovered the stoma with a plaster and it should heel by itself nicely. We werethinking about removing gastrostomy anyway, as Kostya now eats by himself.Maybe it is even for the better, who knows.
During the week Kostya did not sleep well. OnWednesday there were some sign of epileptic seizure coming, so we administeredsome Diazepam, which has helped to prevent seizures. During the day wewere training on the trade mill, spinning the Motomed handles and pedals(spasticity is decreasing), were exercising, and when we only had a chance wewent outside for a walk.On Friday, in the school, where Konstantin used to goto secondary school (Paju school) took place a charity concert and raisedfunds will be donated to the Kosya's treatment.
On Sunday from Tallinn was delivered a long hoped-fortrainer-machine Motomed VIVA 2. Trainer cost 2810 Euros and was paid for fromthe money, which were raised by compassionate people who have made donationsthis autumn. We would like to thank them one more time for all their help andsupport and also wish everyone a very happy festive season ahead! 09.12-15.12.2013 It wasa relatively quiet week. On several occasions mum did ask Kostya whether herecognises her? He responded with a smile on his face. For Kostya's motorskills development we are trying to use playing cubes, chestnuts andacorns. Kostya is progressing well in the gym. On Sunday Kostya's friends cameto visit: Andrey and Volodya. Kostya was looking at Volodya almostnon-stop and was holding his head very well. When Kostya ate a walnut hisfriend Volodya said some joke about it and suddenly Kostya, who beforehand wasvery serious, started to smile. After such reactions we are left to keepguessing, whether Kostya understand what we are talking about?
02.12-08.12.2013 Konstantin and mum are communicating very well. When mum is talking toKostya, he is trying to answer. In the gym Konstantin was rotating the weightlifting bar by himself. He is doing well when stepping over from one steppingfitness board to another and manages not to touch the floor. On Friday eveningKontantin had 2 epileptic seizures, but they were quite moderate. On Saturdayand Sunday Konstantin was in a good mood and was smiling a lot was watchingwhat people around are up to and was paying attention when he watching TV.
25.11-01.12.2013 It was quite a difficultweek. Konstantin did not sleep well during the night time, and during the daytime he was restless and a bit nervous. We managed to go out for a walkjust on the weekend. On Saturday evening at 4pm and 7pm Kostya had two epilepticseizures. On Sunday he was in a good mood and smiled a lot. Kostya is like being reborn after the seizures. He is trying to pronounce something whenwe brushing his teeth and also tries to stick his tongue out. When Kostya doeshis physiotherapy sessions he likes sitting or he lying on the large stabilityball.
18.11-24.11.2013 We continue to exercise withKonstantin in the gym. We were stepping over obstacles to improve walking,using a ball to exercise muscles holding the head, doing some hands and legsstretching exercises. When the ball crosses the way and comes under Kostya'sfeet he is trying to kick the ball. Often Konstantin's mood changes throughoutthe day. Kostya responds well to the lullaby song, when he goes to sleep. Ournews: an article about Konstantin was issued in the Õhtuleht news-paper on the21.11.13: http://www.ohtuleht.ee/554434 .However there are some discrepancies in the translation, but we don't think,that these discrepancies play the most important role and do not concentrate onthis. With our permission there was created the Konstantin's support communityon the Facebook: https://www.facebook.com/K.Zivetjev ,which is run and edited by one of volunteers. There you can find the latestnews about Kostya, photos, news-paper articles and comments in three languages:English, Estonian and Russian.
11.11-17.11.2013 Konstantin responds emotionally to the music and in to some familiarsongs in particular. Just a moment ago, he began to cry when he heard one ofhis favourite musicians called Mityayev. On Tuesday Konstantin had 2 epilepticseizures at 8pm and at 10 pm. After the seizures he has fallen asleep and sleptpretty good through the whole night. Following morning he ate his breakfast allby himself. Did really well while playing with metal triangle (motor skillsdevelopment). With a joy and a smile on his face Konstantin worked out in the gym : https://drive.google.com/file/d/0B2_SbPCpvO2kOWJfekJNOS10UUE/edit?usp=sharing He also made a few steps independently. Whenwe were asking some questions, Konstantin was trying to answer something backand was muttering. On Sunday morning Konstantin said couple of words out loud,but we did not quite hear what exactly did he say, as at the time we were inthe kitchen. 04.11-10.11.2013. We continued our visits to fitness club. Konstantin is enjoying variousactivities. If he keeps this up soon he will be able to do some weight lifting: https://drive.google.com/file/d/0B2_SbPCpvO2kRUhHdzZXc2FoVUE/edit?usp=sharing. Konstantin is restless during the nights. On Wednesday evening Konstantin hadan epileptic seizure. On Friday he was very cheerful. When mum asked Konstantinwhether he recognises her he smiled back.02-08.01.12 The condition during a week is variation: Kostya can sleeps a lot, sometimes he restless, nervous, sometimes plays with objects well, unfolds his arms and took items. In the middle of the week he ate by a wooden spoon and did that pretty well, although preliminary, we have to put food into the spoon. Kostya stretches his hand when greeting him. Three times we visited the speech therapist in the clinic, where him did the massage of face, hands, taught the perception of objects of different materials and different shapes. Kostya likes a lessons, because often on his face we see a smile.
26-01.01.12 Was the last week of 2011. There was not something special. During the day Kostya slept more, but nights can behave restlessly. In the middle of the week one night, not sleeping, was nervous and tense. Fortunately, this condition is not happened into attack, which we feared. Perhaps this can be attributed to the unstable and stormy weather, geomagnetic storms. The New Year night, together with Kostya, we met 2012 year.
19-25.12.11 Gradually motor skills of Kostya's hands is improving. When Kostya brought a piece of apple to his mouth and he fell from his right hand, Kostya by his left hand held the piece and did not let him fall, then the right-hand he took it and sent into his mouth. It is noticeable that his hand movements became more confident. When Kostya gets in the simulator to walk, then he raises his legs to climb up on it. Finished the massage in the clinic, on the second of January we will visit there a speech therapist.
12-18.12.11 Two times were in the clinic, where Kostya were made a hand massage. The following three sessions will be held on the next week. At home when mother done the massage of his right thumb, he slowly but distinctly uttered the word "Hurt." According to mother there is a impression that Kostya can evaluate his condition (for example, in Germany before the attack, he said the word "Bad"). Slightly improved coordination of hands, because Kostya, though not very confidently, takes small pieces with his fingers. We Increase the number of steps and a daily pass at least 200 meters. However, during the week, was anxious, nervous. On Saturday to Sunday did not sleep until 4 o'clock in the morning, sometimes he laughed, uttered some words, which we could not understood.
05-11.12.11 The week passed usually: nothing remarkable happened. Completed the physical therapy in the clinic, next week we will go there for a massage. Kostya for a long time sitting in a chair, occasionally distracted by the physical exercises and walks with father in the apartment. In good weather, we go for a walk. He plays with ball always happy. Putting the pyramid. Sometimes he gives back subjects, but sometimes not. We are reading a alphabet, came to the letter A.
28.11-04.12.11 On the 1th of December Kostya has not strong attack of epilepsy, so the whole day was sleepy. In order that Kostya trained his fingers and learned to take things we began to spread on a plate of fruit slices. It is interesting to observe how he chooses what is proposed. He takes often a slices of mandarin. One evening, when Kostya was lying in bed, father asked him whether he would close his eyes to sleep, to which he nodded his head three times. We continue going by bicycle simulator, we going through the apartment, doing physical exercise. In free time we are listening Mozart and Russian folk tales.
21-27.11.11 Because employment at work at this and next week is not possible to carry Kostya to physical therapy, and last two classes moved to on the fifth of December. Nevertheless, we continue to work with him at home. Every day he goes with the support at least 100 meters. Became more confident to take things with his hands, if necessary, helps the second hand. Upon request, paid items, trying to assemble and disassemble a pyramid, but does not relax the fingers. We began to give to hand a wooden spoon, so that he himself tried to eat, get a little bit.
14-20.11.11 Continued attendance at physiotherapy. On one of them Kostya walked on a treadmill for 6 minutes, with little support for his hands. Was only two sessions with a speech therapist, but, so far, nothing remarkable not happened. Over the weekend, with pleasure, with a smile on his face, looked at your favorite movie about Ivan Brovkin. Good eats by mouth, has learned to swallow the liquid. Likes fruits very.
07-13.11.11 We visited four classes of physiotherapy in Narva clinic. On the classes Kostya are taught to keep a balance, roll from side to side, sit on a chair, walk, see the link:
https://docs.google.com/leaf?id=0B2_SbPCpvO2kYzVhOTA0OTUtYTNjZS00MzFkLTgxNDgtMGY5ODI4OThjODc0&hl=en_US .
At home we are engaged in physical exercise too. Here you can see how Kostya goes by bicycle (bicycle is not plugged to socket):
https://docs.google.com/open?id=0B2_SbPCpvO2kNjRlYzM3ZWItM2U4ZS00ZGNmLWEwNzgtNTM1ZDJmZjBhMWJl
We invited a speech therapist, who will do exercise with Kostya several times a week. There was the first lesson.
31.10-06.11.11 Something special and memorable is not happened. We are continue going through the apartment, playing with a ball. Kostya squeezes fingers into fists rarely, but, anyway, he releases rings difficulty when collects pyramid. We visited a doctor of rehabilitation medicine finally (visit to the doctor we had to wait a month) and received a referral for physical therapy at a city clinic.
24-30.10.11 We were sit down Kostya at a normal chair, so he leaned his arms on the seat. Kostya keeps his head well. When we went to bathe with Kostya to wash him, he saw the threshold booth (height 25 sm), he overstep it himself. Every day, Kostya, with father support from behind by the armpits, go along the apartment not less than 250 meters. In good weather, more than two hours, we walk with Kostya on the street.
https://docs.google.com/leaf?id=0B2_SbPCpvO2kMmMzMjY1NTgtOTk3ZC00YzczLWJhYjQtZjk2YzEwYWY0ZDNj&hl=ru
https://docs.google.com/leaf?id=0B2_SbPCpvO2kMmQwZGU2NWQtNTg1OS00NGFkLWE0ZjEtMDU0YjAzMzBkNTE3&hl=ru
https://docs.google.com/leaf?id=0B2_SbPCpvO2kMzUxY2FkY2ItMGM1OC00NjZjLTgzMTgtMTVjMjA2NWZlZmM2&hl=ru
https://docs.google.com/leaf?id=0B2_SbPCpvO2kYTg5OTczZmMtOGE3Yy00ZDNmLWJlMDAtNWRiY2U5OTUxY2Fh&hl=ru
03-09.10.11 It was the last week, when Kostya was in a